A diagnosis of bladder cancer, and some of treatments for it, can have a significant impact on your life.
Emotional impact
The emotional impact of living with bladder cancer can be huge.
Many people report experiencing a kind of “rollercoaster” effect. For example, you may feel down at receiving a diagnosis, up when the cancer is removed and down again as you try to come to terms with the after-effects of your treatment (see below).
This type of emotional disruption can sometimes trigger feelings of depression. Signs that you may be depressed include:
- being affected during the past month by feelings of sadness or hopelessness
- no longer taking pleasure in the things you enjoy
Contact your GP for advice if you think you may be depressed. There is a range of relatively successful treatments for depression, including antidepressant medication and therapies like cognitive behavioural therapy (CBT).
Read more about coping with cancer.
Urinary diversion
If bladder is removed, an alternative way of passing urine out of your body will be created during the operation. This is called a urinary diversion.
There are various types of urinary diversion, which are described below. In some cases, you may be able to make a choice based on your personal preferences. However, certain treatment options will not be suitable for everyone.
Your multi-disciplinary team (MDT) will provide information about option(s) suitable for you.
Urostomy
A urostomy is carried out during a radical cystectomy.
A small section of small bowel is removed and connected to your ureters (the two tubes that normally carry urine out of the kidneys). The surgeon then creates a small hole in the surface of your abdomen and the open end of the removed bowel is placed in this hole, creating an opening known as a stoma.
A special waterproof bag is placed over the stoma to collect urine.
A stoma nurse will teach you how to care for your stoma and how and when to change the bag.
The Urostomy Association is a UK-based charity which provides information and assistance to people who have recently had, or are about to have, a urostomy.
Continent urinary diversion
A continent urinary is a similar to a urostomy, but without an external bag. Instead, a section of your bowel is used to create a pouch inside your body that stores urine.
The ureters are connected to the pouch and the pouch is connected to an opening in the abdominal wall. Urine is prevented from leaking out by a valve in the opening (stoma).
The pouch is emptied using a thin, flexible tube (catheter). Most people need to empty their pouch about four or five times a day.
Bladder reconstruction
In some cases, it may be possible to create a new bladder, known as a neobladder. This involves removing a section of your bowel and reconstructing it into a balloon-like sac, before connecting it to your urethra (the tube that carried urine out of the body) at one end and your ureters at the other end.
Bladder reconstruction is not a suitable treatment for everyone.
You will be taught how to empty your neobladder by relaxing the muscles in your pelvis while at the same time tightening the muscles in your abdomen.
Your neobladder will not contain the same types of nerve endings as a real bladder so you will not get the distinctive sensation that tells you that you need to pass urine. Some people experience a feeling of fullness inside their abdomen while others have reported that they feel like they need to pass wind.
Due to the loss of normal nerve function, most people with a neobladder will experience some episodes of urinary incontinence (involuntary passing of urine), which usually occurs during the night while asleep.
You may find it useful to empty your neobladder at set times during day, including before you go to bed, to help to prevent incontinence (accidentally wetting yourself).
Guy’s and St Thomas’ Hospital Trust has more information and advice about bladder removal and bladder reconstruction (PDF, 81KB).
Sexual problems
Erectile dysfunction
Contact your MDT if you lose the ability to obtain or maintain an erection after a radical cystectomy. It may be possible for you to be treated with a type of medicine known as phosphodiesterase type 5 inhibitors (PDE5). PDE5s work by increasing the blood supply to your penis.
Sometimes, PDE5s are combined with a device called a vacuum pump, which consists of a cylinder connected to a pump. The penis is placed inside the cylinder and the air is pumped out. This creates a vacuum that causes blood to flow into the penis. A rubber ring is then placed around the base of the penis, which allows an erection to be maintained for around 30 minutes.
Read more about treating erectile dysfunction.
Narrowing of the vagina
Both radiotherapy and cystectomy can cause a woman’s vagina to become shortened and narrowed, which can make penetrative sex painful or difficult.
There are two main treatment options available if you have a narrowed vagina. The first is to apply hormonal cream to your vagina which should help to increase moisture inside your vagina. The second is to use vaginal dilators. These are plastic cone-shaped devices, of various sizes, designed to gently stretch your vagina and make it more supple.
It is usually recommended you use them for a five to ten minute period every day, starting with the dilator that fits in easiest first and gradually increasing the size as your vagina stretches over the following weeks.
Many women find this an embarrassing issue to discuss but it is a well recognised treatment for narrowing of the vagina. Your specialist cancer nurse should be able to provide more information and advice.
You may find the more you have penetrative sex, the less painful it becomes. However, it may be several months before you feel emotionally ready to be intimate with a sexual partner.
Macmillan Cancer Support has some excellent information and a video about sexuality and cancer.